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Table 3 Validity and completeness of patient categorical features across data sources

From: A feasibility study to assess the validity of administrative data sources and self-reported information of breast cancer survivors

Characteristic Data source Reference Standard Concordance Completeness % (proportion)
INCR LHS QUES Proportion correct % (n) Kappa (n, 95 % CI)a PPV (95 % CI) NPV (95 % CI) INCR LHS QUES
Demographics Residence ---- QUES 100 (67) ---- 100 (94.6–100) ---- ---- 100 (119/119) 100 (67/67)
Ethnicity ---- QUES 100 (62) 1 (62) 100 (91.2–100) 100 (85.1–100) 92.4 (110/119) ---- 100 (67/67)
Cohabitation status ---- QUES 60.9 (46) 0.55 (46, 0.33–0.76) 71.1 (55.2–83) 12.5 (2.2–47.1) ---- 73.1 (87/119) 100 (67/67)
Mortality ---- INCR 100 (119) 1 (119) 100 (85.1–100) 100 (96.2–100) 100 (119/119) 100 (119/119) ----
Breast cancer characterization and treatment Laterality ---- INCR 97.8 (89) 0.95 (89, 0.89–1) 97.3 (86.2–99.5) 98.1 (89.9–99.7) 96.6 (115/119) 75.6 (90/119) ----
Surgery ---- INCR 100 (97) ---- 100 (96.2–100) ---- 81.5 (97/119) 97.5 (116/119) ----
Breast conserving surgery ---- INCR 93.8 (97) 0.86 (97, 0.75–0.97) 98.4 (91.5–99.7) 85.3 (69.9–93.6) 81.5 (97/119) 94.1 (112/119) ----
Mastectomy ---- INCR 92.8 (97) 0.84 (97, 0.72–0.95) 91 (81.8–95.8) 96.7 (83.3–99.4) 81.5 (97/119) 94.1 (112/119) ----
ALN dissection ---- INCR 79.4 (97) 0.50 (97, 0.33–0.67) 75.3 (64.9–83.4) 100 (80.6–100) 81.5 (97/119) 92.4 (110/119) ----
Radiotherapy
 Before 2003 ---- LHS claims 28.6 (7) ---- 28.6 (8.2-64.1) ---- 26.9 (7/26) 34.6 (9/26) ----
 2003-2010 ---- LHS claims 87.5 (8) ---- 87.5 (52.9-97.8) ---- 8.6 (8/93) 100 (93/93) ----
Chemotherapy
 Before 2003 ---- LHS claims 44.4 (9) ---- 44.4 (18.9-73.3) ---- 34.6 (9/26) 46 (12/26) ----
 2003-2010    ---- LHS claims 91.7 (12) ---- 91.7 (64.6-98.5) ---- 12.9 (12/93) 100 (93/93) ----
Hormone therapy
 Before 2003 ---- LHS claims 0 (1) ---- 0 (0–79.4) ---- 3.8 (1/26) 65 (17/26) ----
 2003-2010 ---- LHS claims 100 (5) ---- 100 (56.6-100) ---- 5.4 (5/93) 100 (93/93) ----
Personal medical history  Hypertension ---- Medical record 79.1 (67) 0.55 (67, 0.36-0.74) 51.7 (34.4-68.6) 100 (90.8-100) ---- 100 (119/119) 100 (67/67)
 Hyperlipidemia ---- Medical record 73.1 (67) 0.46 (67, 0.25-0.66) 59.4 (42.3-74.5) 85.7 (70.6-93.7) ---- 100 (119/119) 100 (67/67)
 Renal failure ---- Medical record 100 (67) ---- ---- 100 (94.6-100) ---- 100 (119/119) 100 (67/67)
 Rheumatoid arthritis ---- Medical record 97 (67) 0.65 (67, 0.21-1) 50 (15–85) 100 (94.3-100) ---- 100 (119/119) 100 (67/67)
 Diabetes ---- Medical record 97 (67) 0.93 (67, 0.83-1) 90.5 (71.1-97.4) 100 (92.3-100) ---- 100 (119/119) 100 (67/67)
 Osteoporosis ---- Medical record 68.7 (67) 0.37 (67, 0.14-0.59) 67.9 (49.3-82.1) 69.2 (53.6-81.4) ---- 100 (119/119) 100 (67/67)
  1. Abbreviations: INCR Israel National Cancer Registry, LHS Leumit Health Services, QUES questionnaire, CI confidence interval, ALN axillary lymph node
  2. a Agreement analysis was conducted only for symmetric 2-way tables and excluding missing values